Sweet Madeleine

Sweet Madeleine

... Givin' it away for free

Adventure #2: Victoria!
(Tues-Thurs last week)

P.S. I definitely did not eat an entire bag of cheesy dill Kernels popcorn with a spoon during one of Olive’s naps in Victoria. Nope. Not this girl. (Lying through my cheesy dill crusted lips)

Adventure #1: The Pool! 

(last Thursday

Coffee. How does it work?

Someone out there is just dying to explain this to me, I know it.

Why, when I go to some coffee shops and order a decaf coffee, why do they give me an Americano?

“Is an Americano ok?” they ask, and I think to myself, “I don’t know…is it? Is it decaf? Which is what I ordered? Because I can’t have real coffee? Because my baby won’t sleep? JUST GIVE ME A DECAF DRINK THAT I CAN DUMP CREAM INTO AND PRETEND ITS THE REAL THING I DON’T SPEAK YOUR WEIRD COFFEE LANGUAGE”

“Sure!” is what I say. With a meek smile.

So. Internets, why does this happen? Explain my life to me please.

Don’t worry guys, Olive got us home safely.

Don’t worry guys, Olive got us home safely.

SurPRISE!

My family has developed this strange habit of surprising each other with our presence. 

I don’t know when it started, but the way it works is that one of us will be going to a family get together, hanging out at home, or just going about our daily business whenBOOM! SURPRISE SIBLING!

The best one so far (for me, anyway) was when my sister made an unnanounced visit for my baby shower.. (turn down your speakers y’all…there is much screaming and shrieking of “OHMYGOD!OHMYGOD!”)

(EDIT: I can’t upload due to privacy settings on the video…but I’ll work on it. Just know that I was huge, and yelly, and excited.)

(Oh man, I miss that belly. Have I mentioned that before? I MISS IT)

It’s even more fun to surprise people now that Olive is in the mix, because showing up just me is alright, but showing up with Madame ChubbyCheeks is just beyond.

That is what I did yesterday. I was super sad that my mom had gone so long without seeing Olive (book writing, and vehicles, and finances, and time always seem to get in the way), and although I couldn’t make it in time for Mother’s Day, I did managed to hitch a ride with my brother in law, stuffing strollers and high chairs and suitcases into his minivan and hightailing it to Victoria to surprise her.

We arrived at her floating house around 2:30, I ate a delicious burrito, Olive and I napped, and at 5pm my mom got home from work. There was a gift on her kitchen table (a copy of the Olive’s Birth Day book I just finished making) and a sleeping baby in her guest room. She was so excited, and Olive was too, except she showed it by wailing because she was startled awake by all of the happy celebrating - oops! Sorry, Olive.

Anyway, it was lovely, it has been lovely lunching and shopping and spending time with my mom and Mawney, Tomorrow we all go back home for a May long weekend visit. 

I am also starting a social media cleanse tomorrow that will spill into an iPhone cleanse that I have been dreading/putting off pretty much forever. Oh lord, I so do not want to do this, but I must I MUST. Shit is getting ridiculous. 

I’ll elaborate more later. For now, sleeeeep.

Q
I have Gitelman's too! How old were you when you were diagnosed? I was eight years old. Do you have any advice on how to live normally because with high school and all my other issues I'm having a very hard time. I hope you're doing well!
from:Anonymous
A

Aw, diagnosed at eight? That’s rough. I was diagnosed at 23. I’m sorry you have Gitelmans, but glad you found me!

In my experience, the symptoms and management of this kidney disease vary widely, so my first advice would be to get yourself a good Nephrologist and work with him or her to properly manage your condition.

Other things I have found to help:

- Avoid drinking, which can deplete your magnesium really quickly and cause tetany/hospitalization (in my case, anyway). This might be tough because you’re in high school and damn, sometimes that’s easier said than done. Try to be smart though, and if you know you’ll be drinking, make sure someone knows your condition and/or get a MedicAlert bracelet, mix your drinks with gatorade or powerade to replenish electrolytes, and consider beefing up your medication a few days beforehand if your Nephrologist allows you to adjust your dosages as needed.

- Excessive exercise, heat, or sweating can also deplete your electrolytes

- Avoid coffee and black licorice

- Epsom salts are made from Magnesium Sulfate, so pouring a cup or two into a bath is a great way to absorb some extra mag

-Get regular blood tests to stay on top of things

- Research, understand and remember that low magnesium fucks with your head. When you start feeling depressed, unmotivated, overwhelmed, OCD, of lethargic, this is low Magnesium talking.

-Start breastfeeding something so that your Gitelman’s will be temporarily cured, CURED!

-(kidding. obviously)

 

That’s all I can think of at the moment. I wish you the best in managing your condition!

Send me an email at info (at) sweetmadeleine (dot) ca, I have some more info to pass on :)

 

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